This topical guide on infants and toddlers with down syndrome will introduce you to important books, videos, and information resources available from the EI Clearinghouse.
Contact us to request a resource listed below (or ask your local public librarian).
- A Parent’s Guide to Down Syndrome: Toward a Brighter Future
Siegfried M. Pueschel
WS 107 .P976par 2002 44750780
Paul H. Brookes Publishing, 2002
This book provides information on a variety of topics related to Down syndrome such as medical concerns, child development, and education.
- Babies with Down Syndrome: A New Parents’ Guide
Susan J. Skallerup (Ed.)
WS 107 .B114 2008 237018441
Woodbine House, 2008
OCLC Number: 237018441
This book is a collection of articles written by doctors and other professionals about common topics related to Down syndrome, including the baby’s development, early intervention, and more. Also available in Spanish.
- Down Syndrome Parenting 101: Must-Have Advice for Making Your Life Easier
WM 300 H356 2011 727711058
Woodbine House, 2011
This all-purpose book features a variety of parenting information about raising a child with Down syndrome, both from the author’s experiences and that of other families.
- Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters
Brian G. Skotko & Susan P. Levine
WS 107 .S628 2009 276993785
Woodbine House, 2009
This book includes information on Down syndrome and answers many questions that siblings of a person with Down syndrome might have.
- I Can, Can You?
Marjorie W. Pitzer
WS 107 .P692 2004 54806315
Woodbine House, 2004
This children’s book shows babies and toddlers with Down syndrome as they explore the world around them.
- Road Map to Holland: How I Found My Way Through My Son’s First Two Years with Down Syndrome
Jennifer Graf Groneberg
WS 107 G876 2008 165957499
New American Library, 2008
A mother describes her journey of her son’s diagnosis of Down syndrome through family support, early intervention, therapy, and doctor appointments.
- We’ll Paint the Octopus Red
PZ7 .B63515 .S78w 1998 39162250
Woodbine House, 1998
In this illustrated children’s book, a young girl and her father talk about all the things her baby brother with Down syndrome will be able to do.
Contact us to request a resource listed below (or ask your local public librarian). Some videos may be viewed online.
- Down Syndrome: The First 18 Months
108 minutes; DVD
WS 107 .D748dvd 2004 54616493
Woodbine House; 2004.
This is a reassuring and realistic introduction to the unique joys and challenges that children with Down syndrome bring to their families. Includes information on newborns, health concerns, therapies, and expectations.
- Emma’s Gifts: A Documentary
56 minute; DVD
WS 107 .E54d 2006 85382958
Emma’s Gifts Productions; 2006
Documents the story of Emma, a little girl born with Down syndrome, her “normal” twin sister Abigale, and their parents, Mitzi and Michael. This family discovers that Emma’s differences are precious gifts that take them on a journey few families ever experience.
The journal titles linked below will take you to the publisher's homepage. You can ask your local public librarian how to obtain these articles or contact us
for more information.
- Exceptional Parent, 27(2), 46–47
Offering Hope, Not Don’ts: Great Expectations Pay Off.
Jerry Sullivan. (1997)
A father explains how he challenged the stereotypical limited abilities of children after his son was born with Down syndrome.
- Exceptional Parent, 29(2), 72
Breast-feeding When Your Baby Has Hypotonia, Congenital Heart Disease, or Down Syndrome
La Leche League International. (1999)
This article provides support for mothers nursing babies who have Down syndrome and information on adequate weight gain.
The web resources listed below provide quick and easy access to evidence-based online information.
- Answering Questions About Your Child’s Special Needs
This blog post, written by Dr. Susan Fowler, discusses how to talk about a child who has special needs with other parents or children. Also in Spanish.
- Central Illinois Down Syndrome Organization
This not-for-profit organization of families and interested people works to increase public awareness, support families, and improve opportunities for individuals with Down syndrome. The organization also includes a “New Parent Outreach” program where members reach out to new parents.
- Children with Special Needs: Down Syndrome
This 2-page PDF created by the Head Start Center for Inclusion offers families and professionals a brief description of down syndrome, some common characteristics that a child with down syndrome may exhibit and some strategies for overcoming challenges that may be associated with down syndrome.
- Early Intervention
This resource from the National Down Syndrome Society lists specific information related to early intervention for children with Down syndrome. It includes a list of developmental milestones. Also available in Spanish.
- EITP: Down Syndrome Resources
The Early Intervention Training Program (EITP) website offers a variety of national and regional resources related to down syndrome.
- National Association for Down Syndrome
This Web site features information about Down syndrome, including facts about Down syndrome, links to local support groups, and links to other useful resources. The information is also available in Spanish. (serves Chicago)
- National Down Syndrome Congress
This Web site includes information about speech-language therapy, health care, and education.
- National Down Syndrome Society
This Web site features information about Down syndrome, such as current research, and issues associated with Down syndrome, including health concerns, behavior, education, and friendship. Some information is also available in Spanish.
- The Nemours Foundation
This Web site includes information about what causes Down syndrome, how it affects kids, and how parents can enroll their child in early intervention programs.
- Where Can Parents Find Help for Young Children with Special Needs?
Parents often have questions about sources of information and support. This FAQ addresses many of the questions that parents have asked the Illinois Early Learning project staff over the past few years and suggests resources that parents of young children may find useful. Also in Spanish.